The Impact of Cancer Disease on the Families of the Patient, A Case Study of the Pediatric Wing, Cancer Disease Hospital in Lusaka, Zambia

Authors

  • George Pupwe Cancer Disease Hospital
  • Jeff Mugoba Levy Mwanawasa University
  • Niza Rean Simwanza Texila American University Zambia

DOI:

https://doi.org/10.47941/ijhs.2550

Keywords:

Cancer Disease, Pediatric, Caregiver, Oncology, Family Burden

Abstract

Purpose: Globally, cancer casts a heavy shadow. An estimated 12.7 million new cases are diagnosed annually, with about 7.6 million deaths attributed to the disease. Notably, low- and middle-income countries (LMICs) bear a disproportionate burden – over half of all new cases and a staggering two-thirds of cancer deaths occur in these regions. While advancements have been made, with 5-year survival rates exceeding 80%, the fight against childhood cancer continues. Many children still tragically succumb to the disease even after this initial milestone. In fact, cancer is the leading cause of death from illness in children. This research aimed to investigate the impact of cancer disease on the families of the patient, a descriptive analysis of the pediatric wing, cancer disease hospital Lusaka, Zambia.

Methodology: The study identified five major themes reflecting the impact of cancer on patients' families. Emotional burden accounted for 31%, financial strain 30%, healthcare system challenges 25%, coping mechanisms 9%, and social isolation 6%. The majority of participants were female (88%), consistent with traditional caregiving roles. Most participants came from low-to-middle-income households, underscoring financial strain as a significant caregiving challenge. Participants' ages ranged from 21 to 61 years, with the largest group (34%) being in the 36-50 age range.

Findings: These findings underscore the urgent need for comprehensive, caregiver-centric interventions that addressing both immediate caregiving needs and a broader systemic gap in healthcare and community support for the caregivers of the children suffering from cancer at Cancer Disease Hospital in Lusaka, Zambia.

Unique Contribution to Theory, Policy and Practice: By taking actionable steps, policymakers and public health practitioners can significantly improve the well-being of caregivers and the outcomes for the children they care for.

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References

Abdulgafoor M. Bachani et al. (2017) ‘Caregiving for Uganda’s elders with disability: Using cross-sectional surveillance data to identify healthcare service gaps in low- and middle-income settings.’, Disability and Health Journal, 11(3), pp. 456–460.

Abhijeet Singh et al. (2022) ‘Psychosocial Problems in Caregivers of Persons with Mental Illness’, The Malaysian Journal of Psychiatry, Publish Ahead of Print.

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101.

Brian Chanda Chiluba et al. (2017) ‘Caring for a cerebral palsy child: a caregiver’s perspective at the University Teaching Hospital, Zambia.’, BMC Research Notes, 10(1), pp. 724–724.

Bryman, A. (2012). Social Research Methods. Oxford University Press.

Caroline Day et al. (2015) ‘Caring responsibilities, change and transitions in young people’s family lives in Zambia’, Journal of Comparative Family Studies, 46(1), pp. 137–152.

Chris Mweemba et al. (2021) ‘Access barriers to maternal healthcare services in selected hard-to-reach areas of Zambia: a mixed methods design.’, The Pan African medical journal, 40, p. 4.

Creswell, J. W. (2014). Research Design: Qualitative, Quantitative, and Mixed Methods Approaches. Sage Publications.

Denzin, N. K., & Lincoln, Y. S. (2018). The SAGE Handbook of Qualitative Research. SAGE.

FELIX, C. 2023. Magnitude and factors associated with diagnosis delay for childhood malignancies seen at the Uganda Cancer Institute. Makerere University.

Ekaete Francis Asuquo et al. (2017) ‘Assessing Women Caregiving Role to People Living with HIV/AIDS in Nigeria, West Africa’: SAGE Open, 7(1), p. 215824401769201.

Guest, G., Bunce, A., & Johnson, L. (2006). How many interviews are enough? Field Methods, 18(1), 59-82.

Laura E. Dreer et al. (2019) ‘Resilience Among Caregivers of Injured Service Members: Finding the Strengths in Caregiving’, Archives of Physical Medicine and Rehabilitation, 100(4).

Mulima O Walubita et al. (2018) ‘Challenges for health care providers, parents and patients who face a child hood cancer diagnosis in Zambia’, BMC Health Services Research, 18(1), pp. 314–314.

Ribeiro RC, Steliarova-Foucher E, Magrath I, Lemerle J, Eden T, et al. (2008) Baseline status of paediatric oncology care in ten low-income or mid-income countries receiving My Child Matters support: a descriptive study. Lancet Oncol 9: 721–729. [PMC free article] [PubMed] [Google Scholar]

Ruth Oloo et al. (2021) ‘Addressing Unpaid Care and Domestic Work for a Gender-Equal and Inclusive Kenya’.

Sharleen Sibulwa et al. (2019) ‘“Every part of me has changed”-shared lived experiences of adolescents living with cancer in Zambia.’, Health psychology open, 6(1), pp. 2055102919833537–2055102919833537.

Slone JS, Chunda-Liyoka C, Perez M, Mutalima N, Newton R, Chintu C, Friedman DL. Pediatric malignancies, treatment outcomes and abandonment of pediatric cancer treatment in Zambia. PLoS One. 2014;9(2).

Smith, J. A. (2011). Interpretative Phenomenological Analysis: Theory, Method, and Research. SAGE.

Stephen Tettey Nortey et al. (2017) ‘Economic burden of family caregiving for elderly population in southern Ghana: the case of a peri-urban district’, International Journal for Equity in Health, 16(1), pp. 16–16.

Susan C. Reinhard et al. (2020) ‘Caregiver Health and Well-Being, and Financial Strain’, Innovation in Aging, 4, pp. 681–682.

Walter Kipp et al. (2007) ‘Family Caregivers in Rural Uganda: The Hidden Reality’, Health Care for Women International, 28(10), pp. 856–871. Available at: https://doi.org/10.1080/07399330701615275.

WALUBITA, M. O. 2015. Perspectives and experiences of parents/guardians of childhood cancer patients at the University Teaching Hospital (UTH) in Lusaka. The University of Zambia.

WHO (2022). Addressing inequities in breast cancer treatment in sub-Saharan Africa: insights from a breast cancer surgeon in Nairobi.

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Published

2025-02-25

How to Cite

Pupwe, G., Mugoba, J., & Simwanza, N. R. (2025). The Impact of Cancer Disease on the Families of the Patient, A Case Study of the Pediatric Wing, Cancer Disease Hospital in Lusaka, Zambia. International Journal of Health Sciences, 8(1), 41–59. https://doi.org/10.47941/ijhs.2550

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Articles